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Summer is over but I'm still fishing!!
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Discussion Starter · #1 ·
I'm looking to build a rod for my son. He's 2 1/2 and has cancer, rhabdomyosarcoma, I building this for 2 reasons 1) so when he beats this I can teach him how to fly fish he will be about 3 1/2 if things go well, 2) So I can keep my mind off of this for periods of time. I know there tons of classes and work shop out there but with his treatment I don't have the time to make sure I will be at a certain place at a certain time every week. So I'm looking for a mentor to help me build this, I'm wanting to to build a smaller rod and make it two handed, kind of like the echo kids rod. I don't need help with supplies I will get what is needed, I just need help with the knowledge to build it. I will need help on where to get the stuff from. So if anyone out there can help with this please reply. I won't start this project tell the middle of October as that's when I will be back from Seattle, I'm headed there end of August for his radiation. I'm from spokane so if your here that might make things easier or if ur in seattle and would like to meet for lunch while I'm there. But first things first let's see if anyone is there who will help me with this project. thanks
 

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I haven't built a rod for many years, Eric & have forgotten what little I once knew so I'm of no help there. I do wish the very best for your Son and have added him to my prayers. While my Son never battled cancer, he did overcome a significant 17-year challenge during his early lifetime, so I can empathize with what you are experiencing. Should you need to talk or just get out, all you need do is let me know. God bless.
 

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So sorry to hear about your son. Hang in there. I took a similar path when my son was diagnosed with Hodgkins and started tying flies to distract myself. Let me know if you ever need to talk about it. One piece of advice: pay special attention to your wife. It's 100 times worse for her.
 

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Hi Eric,
So sorry about your son's cancer, I can help you build your little buddy's rod. I live in south Seattle and could meet you at the hospital to build the rod. You can be close to your son and my stuff is portable. I've been building rods for 30 years and would be glad to help you and your son. PM me for further info---Steve
 

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Summer is over but I'm still fishing!!
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974 Posts
Discussion Starter · #5 ·
thank you everyone for the warm wishes I just wanted to share a pic from our first visit to Seattle this was about a month ago. as u can see he's in great spirits and has stayed that way.
 

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Eric...

In what I do, I've enough sadness to choke a horse and can't hardly bring myself to read posts about kids with cancer. It completely breaks my heart.

Sounds like you're in good hands with the rod; I would have helped in a heartbeat.

One bit of encouragement: I just hired an associate pastor who is 28 and a survivor of childhood leukemia. Survivors happen, my friend; I'll pray your courageous son is one of them.

If you ever want to talk with our associate, he has a special heart for kids with cancer and their parents and would count it a privilege to correspond. Should you ever want to, just let me know.

Steve
 

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Eric, Normally I don’t recommend short light fly rods for someone beginning as I think they are harder to fish than something more middle of road but for such small young guy I would consider a Batson RX6 in either the 6’6” 2wt or 7’6” 3wt. Batson calls these moderate fast but I would call them moderate. You can get a 2 piece blank for about $30 or a 4 piece for about $40. With a little shopping you can finish this rod for under $100 easy and have a very functional fishing tool. Since Batson is local to the PNW/Seattle area you should be able to avoid the shipping on the blank which is another bonus. Try Utmost or others in the area. I can’t help you with the build as I am nowhere close to PNW.
 

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Summer is over but I'm still fishing!!
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Discussion Starter · #10 ·
I want to thanks everyone for the kind words of encouragement. I have been lucky enough to find someone who is going to help me take on the project. So thanks Steve kokita for helping and it was awesome talking to you today on the phone.
 

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I'm not a rod builder and looked through this forum on a whim....

Eric, I'm truly sorry to read about your little guy. I hope everything is going as good as it can. It's my opinion that your son is in the best of hands there. My youngest has a birth defect and we spent a lot of time at Children's with him needing 17 surgeries over the last 21 years...a couple of which were life threatening...so I can kind of feel your pain, friend.

It was nice to see the wooden Mickey is still there :)

Our (or my) experience was that the days seemed to have no end during some of our stays. It was the little things that brought smiles to everyone. If or when your son is mobile, I'll encourage you to wander around and explore. Our last visit was last year and they still had some awesome fish tanks in different wings of the hospital. The play area is nice with both outdoor and indoor things to do. Wheel chair rides/races down the covered parking garage ramp were fun when mom and security weren't around And my boy liked to see how high he could get the speed control reading on one of the parking floors.

Probably one of my boys favorites was to fly paper airplanes, gliders, or those little rip cord helicopter thingamajigs in the big glassed in open area. We'd wait until later in the evening, after most people went home...launch them over the safety glass...race for the elevator...retrieve them...and do it all over again. Hopefully the increased security staff will look the other way. :)

For you and your wife, the reading room/library on one of the upper floors was a nice get away at times. And I don't know if it's still true or not, but there used to be individual sleeping rooms on one of the upper floors....if you gotta get some much needed sleep during the day.

Also, there are, or were, some trails to walk around some sort of a lake down the hill in the general direction of UW. I found it a nice moving meditation, if you will...it was also a place to curse or cry...whatever the need may be :)

You're probably all set up with lodging, but I'll throw it out there anyway. Consider the Ronald McDonald House. It's within easy walking distance. My wife and I stayed there a couple of times. The rooms were adequate, the locker room type showers were clean, it was quiet, and all we had to do was sign up for a chore or job. Prior to finding it, we had been staying at the Silver Cloud for a reduced rate....that's another thought...if you're already at Ronald McDonald...consider doing a night or so at the Cloud or a similar place....the indoor pool was a relaxer or fun activity for my other boy.

That's all I can think of at the moment....hope this helps until you and your son can get out there to enjoy the new fly rod.

All the best

Mike d
 

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Summer is over but I'm still fishing!!
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Discussion Starter · #12 ·
Mike
Thanks for the kind words we have been here now since last Thursday and are staying at the Seattle cancer Care alliance house. It's nice we tried to get into the Ronald McDonald house but it was full and doesn't look like we will make it there. But this place is nice, I just feel the RMH would have been geared more to my son with this for him to do.

So far so good, he got the worst of his 3 different kinds of chemo yesterday and won't have to get it again for the rest of our stay over here which is nice. He seemed to do better this time then he had the first 2 times he got it, he gets this one 1 every 6 weeks.

I will check out some of the things you have recommended. I'm always open to ideas of things to do with him, I don't want his time over here to be shut up in a room if it doesn't need to be. This last weekend we took him and our daughter to the woodland park zoo. he had a blast but feel a sleep before we we made it through it all, so we might try that again at some point. I'd also like to take him to the science center and aquarium but we will see how funds, time and how he feels as they all play into it.

But thank you very much for the reply.

Eric
 

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No thanks needed...just paying it forward.

If you've never been, both the Science Center and Aquarium are good for the kids. For whatever reason both my boys liked the Naked Mole Rats at the Science Center...I can only guess they are still there. Should you make it to the Aquarium, you might be lucky enough to see some salmon in the fish ladder & indoor stream. I'm sure whatever you choose will be good.

Like most other things in Seattle, they can be kinda pricey after you add parking and some food. Perhaps you can get a voucher or coupon through the hospital or the Cancer Care Alliance....Especially since your little guy will probably be needing short trips until he gets his strength back.

And if your a Seinfeld fan, for some free fun, try to figure out who the Gyro Nazi is in the hospital cafeteria. I'm guessing he's still there...and always made me smile;)

Finally, I'll apologize in advance here if I'm over stepping my bounds...( my wife says I always have to fix stuff...) but pay attention to your daughter, too. Not that you weren't or aren't...because we've obviously never met.....I have two boys, the older one is about two years older....we always took him along to Children's because we have no family in Bellingham and, well, families stick together. My oldest is now 24 years old and he still has a very hard time seeing or interacting with people who are ill because of all the stuff he saw and experienced with his younger brother.....just sayin...

Get some ice cream :)

Mike d
 
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